Ministria e Sh\u00ebndet\u00ebsis\u00eb informon se jan\u00eb siguruar dhe dor\u00ebzuar terapit tabletare p\u00ebr personat me s\u00ebmundje t\u00eb rrall\u00eb q\u00eb jan\u00eb regjistruar n\u00eb regjistrin elektronik p\u00ebr s\u00ebmundje t\u00eb rralla p\u00ebr muajt prill, maj dhe qershor.Ky grup pacient\u00ebsh e ka t\u00eb nevojshme \u00a0terapin\u00eb \u00a0p\u00ebr periudh\u00ebn n\u00eb vazhdim. Ata pacient\u00eb q\u00eb marrin terapi ampulare u sigurohet qasje e sigurt dhe e izoluar deri tek \u00a0klinikat p\u00ebrkat\u00ebse. Me k\u00ebt\u00eb, pacient\u00ebt jan\u00eb t\u00eb mbrojtur \u00a0nga vizitat n\u00eb Klinika dhe nga rreziku i mundsh\u00ebm i infektimit me KOVID-19 n\u00eb periudh\u00ebn n\u00eb vazhdim.<\/p>\n
Me fillimin e koronavirusit n\u00eb vend, u b\u00eb nj\u00eb shp\u00ebrndarje p\u00ebr t\u00eb gjitha institucionet e sh\u00ebndetit publik q\u00eb trajtojn\u00eb pacient\u00ebt me s\u00ebmundje t\u00eb rralla. Aktualisht nuk ka munges\u00eb t\u00eb asnj\u00eb lloj barne dhe pacient\u00ebt kan\u00eb marr\u00eb terapi p\u00ebr 2-3 muaj. N\u00ebp\u00ebr Klinika \u00a0p\u00ebr shumic\u00ebn e barnave ka sasi t\u00eb mjaftueshme \u00a0deri n\u00eb qershor t\u00eb vitit \u00a02020.
\nDeri n\u00eb fund t\u00eb muait Marsi t\u00eb vitit 2020, 530 persona me s\u00ebmundje t\u00eb rralla jan\u00eb regjistruar n\u00eb Regjist\u00ebr.<\/p>\n
Nga k\u00ebto, mbi 150 jan\u00eb me fibroz\u00eb cistike, p\u00ebr t\u00eb cil\u00ebt terapia ofrohet p\u00ebrmes Fondit t\u00eb Sigurimit \u00a0Sh\u00ebndet\u00ebsore.<\/p>\n
N\u00eb baz\u00eb t\u00eb numrit t\u00eb pacient\u00ebve q\u00eb jan\u00eb n\u00eb \u00a0terapi ,n\u00eb vitin 2015 me \u00a0program \u00a0jan\u00eb \u00a0p\u00ebrfshir\u00eb rreth 96 pacient\u00eb, n\u00eb 2018 rreth 140 pacient\u00eb, n\u00eb 2019 rreth 170 pacient\u00eb, nd\u00ebrsa n\u00eb vitin 2020 n\u00eb \u00a0program do t\u00eb p\u00ebrfshihen mbi 185 pacient\u00eb + 150 me fibroz\u00eb Cistike.P\u00ebrmes programit p\u00ebr trajtimin \u00a0e s\u00ebmundjeve t\u00eb rralla n\u00eb vitin 2020, do t\u00eb sigurohen gjithsej 35 barna \u00a0p\u00ebr pacient\u00ebt me s\u00ebmundje t\u00eb rralla (3 barna t\u00eb reja: p\u00ebr hipertension pulmonar idiopatik \u00a0(si p\u00ebrzgjedhje e \u00a0tret\u00eb e \u00a0barit p\u00ebr k\u00ebt\u00eb s\u00ebmundje), p\u00ebr angioedem\u00eb trash\u00ebgimore (si p\u00ebrzgjedhje e tret\u00eb e barit p\u00ebr k\u00ebt\u00eb s\u00ebmundje -), dhe nj\u00eb bar\u00eb t\u00eb ri p\u00ebr trajtimin e s\u00ebmundjes \u00a0Goshe (edhe p\u00ebr k\u00ebt\u00eb s\u00ebmundje \u00a0tashm\u00eb ka \u00a0 nj\u00eb zgjedhje prej 4 barnash p\u00ebr t\u00eb trajtuar k\u00ebta pacient\u00eb).Prej vitit 2017 deri m\u00eb sot,n\u00eb program jan\u00eb future \u00a0gjithsej 9 barna t\u00eb reja Orfan edhe at\u00eb:-2 barna t\u00eb reja p\u00ebr terapin\u00eb \u00a0Goshe (si zgjedhje \u00a0e dyt\u00eb e barit \u00a0p\u00ebr k\u00ebt\u00eb s\u00ebmundje),-1 bar\u00eb \u00a0i ri (terapi tabletare) p\u00ebr pacient\u00ebt me Goshe,-1 bar\u00eb i ri p\u00ebr trajtimin e personave me PAF \u2013 polenuropatia amiloide familjare,-1 bar\u00eb i ri p\u00ebr trajtimin e anemis\u00eb aplastike,-1 bar\u00eb i ri p\u00ebr trajtimin e pacient\u00ebve me Dg. Fibroza pulmonare p\u00ebr 8 pacient\u00eb,-1 bar\u00eb I ri Spinraza e p\u00ebr pacient\u00ebt me Atrofi Muskulare Spinale (AMS),-1 bar\u00eb i ri p\u00ebr hypertension idiopatik pulmonar (si zgjedhje e tret\u00eb e barit p\u00ebr \u00a0k\u00ebt\u00eb s\u00ebmundje),-1 barn\u00eb i ri p\u00ebr angioedem\u00ebn trash\u00ebgimore (si zgjedhje e tret\u00eb e barit p\u00ebr \u00a0k\u00ebt\u00eb s\u00ebmundje).<\/p>\n
Me programin p\u00ebr vitin 2019, p\u00ebr her\u00eb t\u00eb par\u00eb, u sigurua terapi p\u00ebr pacient\u00ebt e s\u00ebmur me sindrom\u00ebn Alcajmer,t\u00eb cil\u00ebn terapi pacient\u00ebt deri n\u00eb at\u00eb koh\u00eb e siguronin privat.<\/p>\n
Nj\u00ebkoh\u00ebsisht , ishte e siguruar terapia me barin Bostantan p\u00ebr f\u00ebmij\u00ebt me anomali \u00a0t\u00eb zemr\u00ebs q\u00eb nga lindja \u00a0dhe hipertension pulmonar, prind\u00ebt e t\u00eb cil\u00ebve terapin \u00a0m\u00eb par\u00eb i siguronin \u00a0duke e bler\u00eb privat<\/p>\n","protected":false},"excerpt":{"rendered":"
Ministria e Sh\u00ebndet\u00ebsis\u00eb informon se jan\u00eb siguruar dhe dor\u00ebzuar terapit tabletare p\u00ebr personat me s\u00ebmundje t\u00eb rrall\u00eb q\u00eb jan\u00eb regjistruar n\u00eb regjistrin elektronik p\u00ebr s\u00ebmundje t\u00eb rralla p\u00ebr muajt prill, maj dhe qershor.Ky grup pacient\u00ebsh e ka t\u00eb nevojshme \u00a0terapin\u00eb \u00a0p\u00ebr periudh\u00ebn n\u00eb vazhdim. Ata pacient\u00eb q\u00eb marrin terapi ampulare<\/p>\n","protected":false},"author":1,"featured_media":410,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[18],"tags":[],"_links":{"self":[{"href":"https:\/\/zdtetovo.mk\/page\/wp-json\/wp\/v2\/posts\/522"}],"collection":[{"href":"https:\/\/zdtetovo.mk\/page\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/zdtetovo.mk\/page\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/zdtetovo.mk\/page\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/zdtetovo.mk\/page\/wp-json\/wp\/v2\/comments?post=522"}],"version-history":[{"count":1,"href":"https:\/\/zdtetovo.mk\/page\/wp-json\/wp\/v2\/posts\/522\/revisions"}],"predecessor-version":[{"id":523,"href":"https:\/\/zdtetovo.mk\/page\/wp-json\/wp\/v2\/posts\/522\/revisions\/523"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/zdtetovo.mk\/page\/wp-json\/wp\/v2\/media\/410"}],"wp:attachment":[{"href":"https:\/\/zdtetovo.mk\/page\/wp-json\/wp\/v2\/media?parent=522"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/zdtetovo.mk\/page\/wp-json\/wp\/v2\/categories?post=522"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/zdtetovo.mk\/page\/wp-json\/wp\/v2\/tags?post=522"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}